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Endometriosis and Incontinence: Ending the Silence

2024-03-15 22:07

What is endometriosis?

The inside of the uterus is lined with a special layer of tissue called the endometrium. And each month that a woman doesn’t get pregnant, this lining of tissue breaks down and sheds, resulting in a period.

In those with endometriosis, tissue that looks and acts like endometrial tissue implants and grows outside of the uterus in locations throughout the pelvic cavity. Every month, this endometrial-like tissue acts the same way as the endometrium: building, breaking down, and bleeding. However, since it lives outside of the uterus, the blood has nowhere to go, causing inflammation, swelling, and scarring in the surrounding tissue and organs.

A myriad of symptoms at all ages.

Depending on where the misplaced tissue implants, patients can experience a wide variety of symptoms, including chronic pain, heavy periods, and infertility. Common problem areas in the body include – but, importantly, are not restricted to – the ovaries, fallopian tubes, the peritoneum (the lining of the abdominal cavity), bowels, and urinary tract.

Sadly, the most universal symptom of endometriosis is pain – painful periods, pain during sex, painful bowel movements, low-back pain, or pain in the legs are some of the most frequently reported sensations.

However, there are many other less-discussed yet equally life-disrupting symptoms that endometriosis sufferers endure – including bladder symptoms – even from a very young age.

While many individuals don’t receive an official diagnosis until their 30s or 40s, many report symptoms that began in their adolescence.4

In a 2015 study of teens who underwent surgery and were diagnosed with endometriosis, 52% experienced at least one genito-urinary symptom.5

How does endometriosis affect the bladder?

It’s estimated that up to 12% of people with endometriosis develop urinary tract endometriosis (UTE), which refers to endometriotic implants of the bladder, ureter, kidney, and urethra.6


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